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Janet

In article >,
says...
>
> On Thu, 31 Oct 2013 19:21:15 -0000, Janet > wrote:
>
> >In article >,
> >says...
> >>
> >> On 2013-10-31, Ed Pawlowski > wrote:
> >>
> >> > One of the most valuable resources is people actually living with the
> >> > same condition you have.
> >
> > and one of the commonest mistakes people make when speaking to
> >strangers on the net, is the assumption that matching symptoms or
> >medication means the other person shares the same medical condition.
> >
>
> It is a tool. It that to be used properly. Medical researcher do the
> same thing, only they do it in a formal organized manner. Medical
> researcher, doctors, scientists talk to many people with the same
> conditions and make conclusions from their observation.

The difference is, that medical researchers have (apart from their
scientific training) access to the full medical records and diagnostic
results; so they know which people have the same condition. They compare
apples with apples.

>
> >
> > This is just one of many places to find
> >> > them. I'd not blindly accept what anyone says as absolute truth, but
> >> > it may lead to an avenue to travel to the cure or information that
> >> > does work for you. It is a tool that must be used with care.
> >>
> >> Agree. Everyone reacts differently to different drugs, so my
> >> experiences will most likely not be your experiences. Also, there are
> >> a whole buncha docs that know spit about gout or they think it's jes a
> >> minor affliction self-imposed by unthinking gluttons. Nothing could
> >> be further from the truth. That's why you want a rheumatologist, an
> >> arthritis specialist, as gout is actually a form of arthritis.
> >
> > You're advising someone who had a liver transplant. Gout is a common
> >complication following liver transplant. The anti-rejection drug
> >cyclosporin causes an increase in uric acid.
> >
> > The medical management of his gout has to mesh with the other side
> >effects of transplant and lifelong transplant medication.
> >
> > Janet UK
>
> Right, and to be sure it is happening properly, do some research and
> talk to others and see if what they do applies to you. My only advice
> it to check things out, not to make any specific changes or actions.
> That is up to the patient and doctor to discuss. Research helps the
> patient to understand and perhaps to ask better questions of his
> doctor.