merryb wrote:
> kilikini wrote:
>> Sorry, I had to just do a catch-up/erase on posts because I've been
>> out of town for a couple of days, and had over 1200 messages! In
>> any case, I have a serious question that I wonder if anyone can
>> answer. I've done some googles, but can't find any sort of menu for
>> what I need.
>>
>> I was just diagnosed with hemochromatosis.
>>
>> (link)
>> http://digestive.niddk.nih.gov/ddise...osis/index.htm
>>
>> It's an inherited liver disease (both parents have to have the gene)
>> which means my body considers iron a toxin. In essence, anything
>> I've eaten from babyhood on, has been stored in my liver and is
>> giving me cirrhosis. (NOTE: This is NOT alcohol related....)
>>
>> My doctor has advised me against eating meat, dairy, anything carb
>> related, no green leafy veggies, no beets, no shellfish, no tuna, no
>> salmon - for at least a year until they can work on this part of me
>> and start phlebotomy treatment (almost like dialysis). Meanwhile,
>> as of most likely Monday or Tuesday, I'm going to have my cancer
>> surgery thus they want me to be fully healed before they start on
>> the liver thing. If the phlebotomy treatments don't work, I'll need
>> a liver transplant.
>>
>> Does anyone, possibly, have any ideas on menus? I'm kind of at a
>> loss here and just looking for anything I can eat. The doctor said
>> my liver enzymes will NOT go up if I do NOT intake any more iron
>> through food or even, get this, a cast iron skillet. This is a
>> permanent illness and one I will have to make immediate and
>> permanent adjustments for.
>>
>> Any help is appreciated.
>>
>> kili
That REALLY sucks!
The only suggestion that I have is to get in touch with a good nutritionist.
My thoughts are with you.
Ken.
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