In article >,
says...
>
> On 2013-10-31, Ed Pawlowski > wrote:
>
> > One of the most valuable resources is people actually living with the
> > same condition you have.

and one of the commonest mistakes people make when speaking to
strangers on the net, is the assumption that matching symptoms or
medication means the other person shares the same medical condition.


This is just one of many places to find
> > them. I'd not blindly accept what anyone says as absolute truth, but
> > it may lead to an avenue to travel to the cure or information that
> > does work for you. It is a tool that must be used with care.
>
> Agree. Everyone reacts differently to different drugs, so my
> experiences will most likely not be your experiences. Also, there are
> a whole buncha docs that know spit about gout or they think it's jes a
> minor affliction self-imposed by unthinking gluttons. Nothing could
> be further from the truth. That's why you want a rheumatologist, an
> arthritis specialist, as gout is actually a form of arthritis.

You're advising someone who had a liver transplant. Gout is a common
complication following liver transplant. The anti-rejection drug
cyclosporin causes an increase in uric acid.

The medical management of his gout has to mesh with the other side
effects of transplant and lifelong transplant medication.

Janet UK

In article >,
says...
>
> On Thu, 31 Oct 2013 09:18:33 -0400, Goomba >
> wrote:
>
>
>
> >
> >How many others here have had a LIVER TRANSPLANT and can speak about
> >gout meds and implications with any experience? Really???
> >
>
> The question asked had nothing to do with Livers,


He said, he'd had a liver transplant. You can't ignore the medical
significance of that factor in relation to gout and its treatment.

Janet UK

On Thu, 31 Oct 2013 14:54:10 -0400, "bhigh" >
wrote:

>
>
>"Metspitzer" wrote in message
.. .
>
>On Thu, 31 Oct 2013 09:59:33 -0400, "bhigh" >
>wrote:
>
>>
>>
>>"Metspitzer" wrote in message
. ..
>>
>>I have been prescribed Allopurinol for gout. Since I have had a liver
>>transplant, I only take 200mg of Allopurinol where, I am told, 300mg
>>is the standard amount. Anyway I am also prescribed Colcry to take
>>when the gout pain comes on. I am supposed to stop the Allopurinol
>>and take the Colcry. The instructions on the bottle say to take 1 and
>>then another one every hour (up to 5) until the pain is relieved. I
>>tried that last time I had a flare up and spend day and night in the
>>bathroom.
>>
>>The doctor warned that the Colcry makes you go to the bathroom, but
>>what I am wondering is that is the going to the bathroom a side effect
>>of the meds or is that going to the bathroom what stops the gout pain.
>>________________________________________________ ______
>>
>>Define "go to the bathroom".
>
>In a word.......diarrhea. I really didn't want to have to use that
>word.
>----------------------------------------------------------
>
>That's ok. For all we know you could have meant simply walking to the
>bathroom. :-)
I think the people that do take Colcry would understand that there was
no walking to the bathroom.
>I had a bout of gout this summer. I am not in any risk group, but was
>partaking heartily of ales
>porters, and stouts.
>It was pretty painful, but no meds were needed, just stopping the beer and
>drinking lots of water.
Drinking lots of water is good advice for all sorts of things. I
drink water almost exclusively.

On 31 Oct 2013 14:43:20 GMT, notbob > wrote:

>On 2013-10-31, Metspitzer > wrote:
>> I have been prescribed Allopurinol for gout. Since I have had a liver
>>
>> The doctor warned that the Colcry makes you go to the bathroom, but
>> what I am wondering is that is the going to the bathroom a side effect
>> of the meds or is that going to the bathroom what stops the gout pain.
>
>I first thought you were a troll, the last question being so bizarre.
>I can see, now, you are not.
>
>I've been taking allupurinol for over 10 yrs. This for one very
>severe attack of gout. The entire episode lasted 8 mos. I took
>colchicine and one other drug. I endured crutches and a cane for 6
>mos, an anal itch I was ready to take a claw hammer to, multiple
>migraines, and finally, a spinal tap. In short, it was a nightmare
>brought on by my own personal allergies, whatever they may be,
>incompetent doctors, and a short lived but intense craving for salt
>dried anchovies. Allupurinol was a godsend.
>
>My first advice is, find a good doctor, preferrably a rheumatologists.
>Quit eating any small fish, like anchovies or sardines or smelt.
>Drink plenty of water. The going to the bathroom thing is the result
>of drinking mucho water. Take yer allupurinol religiously.
>
>Here's a few facts. Gout is a build up of uric acid in the blood
>stream. When there is too much, it crystalizes and the crystals
>settle in the soft tissue of bone joints. It's like broken glass
>shards in yer flesh and it hurts! Uric acid build up is caused by one
>of two things. Yer body is creating too much of it or yer body is not
>eliminating it quick enough. Uric acid is caused by converting the
>purines in yer food. All foods have 'em, some waaay more than others,
>so diet is important. It's genetic. Allupurinol helps yer body git
>rid of uric acid. Lastly, and most importantly, IMO, it takes weeks
>and months, not days, to get yer uric acid level down, so don't expect
>any short term solutions. Also, repeated attacks will break down and
>irreparably destroy joint tissue, so you want to knock gout down and
>keep it down.
>
>Colcry is a brand name for colchicine, which is good for knocking down
>a full blown attack of gout, but it's not a long term solution and the
>side effects can be brutal. I can't handle the drug for more than
>about 5 days. It's a temporary solution to a long term affliction,
>but it has its advantages. I still keep some in the house. There can
>be side effects to allupurinol, specially from over dosing. I
>suffered sore and achy muscles, for months. This no doubt due to
>taking initial doses of up to 1000mgs per day. When I got down to
>300mgs, the side effects disappeared. The doctor claimed he'd never
>heard of such side effects. Well, I had it, but perhaps that's jes
>me.
>
>The allupurinol will do the job you need and is relatively benign. At
>least I no longer fear it. I can now eat/drink anything I want,
>including anchovies, but I keep that to about once per year. Gout is
>no picnic, but it can be controlled and lived with. Basically, you
>jes gotta be smarter than the gout. Good luck.
>
>nb
>
Thank you

On Thu, 31 Oct 2013 19:21:15 -0000, Janet > wrote:

>In article >,
>says...
>>
>> On 2013-10-31, Ed Pawlowski > wrote:
>>
>> > One of the most valuable resources is people actually living with the
>> > same condition you have.
>
> and one of the commonest mistakes people make when speaking to
>strangers on the net, is the assumption that matching symptoms or
>medication means the other person shares the same medical condition.
>

It is a tool. It that to be used properly. Medical researcher do the
same thing, only they do it in a formal organized manner. Medical
researcher, doctors, scientists talk to many people with the same
conditions and make conclusions from their observation.


>
> This is just one of many places to find
>> > them. I'd not blindly accept what anyone says as absolute truth, but
>> > it may lead to an avenue to travel to the cure or information that
>> > does work for you. It is a tool that must be used with care.
>>
>> Agree. Everyone reacts differently to different drugs, so my
>> experiences will most likely not be your experiences. Also, there are
>> a whole buncha docs that know spit about gout or they think it's jes a
>> minor affliction self-imposed by unthinking gluttons. Nothing could
>> be further from the truth. That's why you want a rheumatologist, an
>> arthritis specialist, as gout is actually a form of arthritis.
>
> You're advising someone who had a liver transplant. Gout is a common
>complication following liver transplant. The anti-rejection drug
>cyclosporin causes an increase in uric acid.
>
> The medical management of his gout has to mesh with the other side
>effects of transplant and lifelong transplant medication.
>
> Janet UK

Right, and to be sure it is happening properly, do some research and
talk to others and see if what they do applies to you. My only advice
it to check things out, not to make any specific changes or actions.
That is up to the patient and doctor to discuss. Research helps the
patient to understand and perhaps to ask better questions of his
doctor.

I have first hand knowledge and experience with this sort of thing. It
not only works, it can save a life, it can fix a lot of problems. No
one knows you body as well as you do and what reactions you are
experiencing.

On Thu, 31 Oct 2013 19:29:37 -0000, Janet > wrote:

>In article >,
>says...
>>
>> On Thu, 31 Oct 2013 09:18:33 -0400, Goomba >
>> wrote:
>>
>>
>>
>> >
>> >How many others here have had a LIVER TRANSPLANT and can speak about
>> >gout meds and implications with any experience? Really???
>> >
>>
>> The question asked had nothing to do with Livers,
>
>
> He said, he'd had a liver transplant. You can't ignore the medical
>significance of that factor in relation to gout and its treatment.
>
> Janet UK
>
>
He said he had the shits and wondered if that was part of the cure.
Liver did not factor into his rush to the bathroom.

In article >,
says...
>
> On Thu, 31 Oct 2013 19:21:15 -0000, Janet > wrote:
>
> >In article >,
> >says...
> >>
> >> On 2013-10-31, Ed Pawlowski > wrote:
> >>
> >> > One of the most valuable resources is people actually living with the
> >> > same condition you have.
> >
> > and one of the commonest mistakes people make when speaking to
> >strangers on the net, is the assumption that matching symptoms or
> >medication means the other person shares the same medical condition.
> >
>
> It is a tool. It that to be used properly. Medical researcher do the
> same thing, only they do it in a formal organized manner. Medical
> researcher, doctors, scientists talk to many people with the same
> conditions and make conclusions from their observation.

The difference is, that medical researchers have (apart from their
scientific training) access to the full medical records and diagnostic
results; so they know which people have the same condition. They compare
apples with apples.


>
> >
> > This is just one of many places to find
> >> > them. I'd not blindly accept what anyone says as absolute truth, but
> >> > it may lead to an avenue to travel to the cure or information that
> >> > does work for you. It is a tool that must be used with care.
> >>
> >> Agree. Everyone reacts differently to different drugs, so my
> >> experiences will most likely not be your experiences. Also, there are
> >> a whole buncha docs that know spit about gout or they think it's jes a
> >> minor affliction self-imposed by unthinking gluttons. Nothing could
> >> be further from the truth. That's why you want a rheumatologist, an
> >> arthritis specialist, as gout is actually a form of arthritis.
> >
> > You're advising someone who had a liver transplant. Gout is a common
> >complication following liver transplant. The anti-rejection drug
> >cyclosporin causes an increase in uric acid.
> >
> > The medical management of his gout has to mesh with the other side
> >effects of transplant and lifelong transplant medication.
> >
> > Janet UK
>
> Right, and to be sure it is happening properly, do some research and
> talk to others and see if what they do applies to you. My only advice
> it to check things out, not to make any specific changes or actions.
> That is up to the patient and doctor to discuss. Research helps the
> patient to understand and perhaps to ask better questions of his
> doctor.

In article >,
says...
>
> On Thu, 31 Oct 2013 19:29:37 -0000, Janet > wrote:
>
> >In article >,
> >says...
> >>
> >> On Thu, 31 Oct 2013 09:18:33 -0400, Goomba >
> >> wrote:
> >>
> >>
> >>
> >> >
> >> >How many others here have had a LIVER TRANSPLANT and can speak about
> >> >gout meds and implications with any experience? Really???
> >> >
> >>
> >> The question asked had nothing to do with Livers,
> >
> >
> > He said, he'd had a liver transplant. You can't ignore the medical
> >significance of that factor in relation to gout and its treatment.
> >
> > Janet UK
> >
> >
> He said he had the shits and wondered if that was part of the cure.
> Liver did not factor into his rush to the bathroom.

From your diagnostic examination of his posts, are you quite certain
of that? Diarrhoea might be related to his gout treatment; it's also
one of the symptoms of liver failure.

Janet

On Thu, 31 Oct 2013 23:32:51 -0000, Janet > wrote:

>In article >,
>says...
>>
>> On Thu, 31 Oct 2013 19:29:37 -0000, Janet > wrote:
>>
>> >In article >,
>> >says...
>> >>
>> >> On Thu, 31 Oct 2013 09:18:33 -0400, Goomba >
>> >> wrote:
>> >>
>> >>
>> >>
>> >> >
>> >> >How many others here have had a LIVER TRANSPLANT and can speak about
>> >> >gout meds and implications with any experience? Really???
>> >> >
>> >>
>> >> The question asked had nothing to do with Livers,
>> >
>> >
>> > He said, he'd had a liver transplant. You can't ignore the medical
>> >significance of that factor in relation to gout and its treatment.
>> >
>> > Janet UK
>> >
>> >
>> He said he had the shits and wondered if that was part of the cure.
>> Liver did not factor into his rush to the bathroom.
>
> From your diagnostic examination of his posts, are you quite certain
>of that? Diarrhoea might be related to his gout treatment; it's also
>one of the symptoms of liver failure.
>
> Janet
>
>
The indicated course of action is to call his doctor. If he is in the
States, he should have received a drug info sheet. It clearly states
to call the doctor. See here.
http://www.drugs.com/sfx/colcrys-side-effects.html
I read all the info sheets and follow them to the letter. I don't ask
friends, neighbors and newsgroups about what I should do.
Call the doctor.
Janet US

"Janet Bostwick" > wrote in message
...
> On Thu, 31 Oct 2013 10:34:25 -0300, wrote:
>
>>On Thu, 31 Oct 2013 09:18:33 -0400, Goomba >
>>wrote:
>>
>>>On 10/31/13 9:02 AM, Ophelia wrote:
>>>
>>>>> Getting medical advice on a cooking site is worth about as much as you
>>>>> paid for it.
>>>>> Nothing wrong with using established reputable resources online and
>>>>> doing your own research. RFC ain't necessarily one of them.
>>>>
>>>> True but reading suggestions here might well point to something new to
>>>> him that he can go and search out. Then he will know if it is worth
>>>> considering.
>>>
>>>How many others here have had a LIVER TRANSPLANT and can speak about
>>>gout meds and implications with any experience? Really???
>>>
>>>I see queries such as this, cat issues, all of Julie's posts as seeking
>>>attention more than actual seeking advice. YMMV.
>>
>>Well that would point to a need the doctor has not fulfilled then - if
>>such is the case.
>
> I think the best solution is not to rely on just the family medicine
> doctor. That doctor should be the central point of your health care
> who refers you on to doctors who specialize. One doctor cannot be
> informed and current on everything. Unfortunately, many people can't
> afford or their insurance won't cover the cost of multiple doctors.
> Janet US

But the problem I have run into there, is that each Dr. thinks I have a
different thing. One said psoriatic arthritis. Another said it is not that
but fibromyalgia. Still another said neither of those things but venous
insufficiency which I believe that I do have. But I also believe that at
times I have had the fibromyalgia as well. It can get frustrating when one
Dr. tells me not to listen to another Dr. and only listen to him/her. I
don't think I have had psoriatic arthritis but that is the diagnosis that he
gave me. Verbally he also told me that I had fibromyalgia but he put on the
paper that it is psoriatic arthritis. But two other Drs. did at least agree
on the fibro. which I believe is only a symptom and not an actual syndrome
or disease. But I could be wrong on that.

Can also make it difficult when one specialist prescribes a medication for
one thing that is contraindicated for another medical condition that I have.
I was made very ill because of this. *I* knew this and questioned the
pharmacist about this but she thought it would be okay. Two doses into it,
it became clear that it was not okay. And all the Dr. had to say was that
he was sorry.

Have something like this happen to you a few times and your trust in Drs.
goes waaaay down.

On 2013-11-01, Janet Bostwick > wrote:

> I read all the info sheets and follow them to the letter. I don't ask
> friends, neighbors and newsgroups about what I should do.
> Call the doctor.

Your trust is touching, but I've learned the hard way that too many
doctors don't know their ass from a hole in the ground. I suffered
three such doctors in my bout with gout. One clueless pup had me
endure a totally pointless spinal tap to cover his inexperienced ass.
I had two heart specialist shrug their shoulders over my unrelated
high blood pressure episodes that were mimicking a heart attack. I
finally figured out on my own I was being over dosed a beta blocker BP
med. The number of times I've discovered the doctor claiming all
omnipotent knowledge is really a total moron are too numerous to
relate, here.

nb

On 10/31/2013 7:32 PM, Janet wrote:

>>>
>> He said he had the shits and wondered if that was part of the cure.
>> Liver did not factor into his rush to the bathroom.
>
> From your diagnostic examination of his posts, are you quite certain
> of that? Diarrhoea might be related to his gout treatment; it's also
> one of the symptoms of liver failure.
>
> Janet
>
I did not diagnose anything. I never said it was caused by anything in
particular. You are putting words in my mouth because of you reading
comprehension problems. I did lead him to a couple of sources that may
be of help explaining a simple question. You are raising this beyond
the original question.

Stop making thing up Go back and read the original post.

"Gregory Morrow" > wrote in message
...
> Metspitzer wrote:
>
>> I have been prescribed Allopurinol for gout. Since I have had a liver
>>
>> transplant, I only take 200mg of Allopurinol where, I am told, 300mg
>>
>> is the standard amount. Anyway I am also prescribed Colcry to take
>>
>> when the gout pain comes on. I am supposed to stop the Allopurinol
>>
>> and take the Colcry. The instructions on the bottle say to take 1 and
>>
>> then another one every hour (up to 5) until the pain is relieved. I
>>
>> tried that last time I had a flare up and spend day and night in the
>>
>> bathroom.
>>
>>
>>
>> The doctor warned that the Colcry makes you go to the bathroom, but
>>
>> what I am wondering is that is the going to the bathroom a side effect
>>
>> of the meds or is that going to the bathroom what stops the gout pain.
>
>
> The colchicine has the side effect of making one go to the bathroom...

To do what? Read magazines?

"notbob" > wrote in message
...
> On 2013-11-01, Janet Bostwick > wrote:
>
>> I read all the info sheets and follow them to the letter. I don't ask
>> friends, neighbors and newsgroups about what I should do.
>> Call the doctor.
>
> Your trust is touching, but I've learned the hard way that too many
> doctors don't know their ass from a hole in the ground. I suffered
> three such doctors in my bout with gout. One clueless pup had me
> endure a totally pointless spinal tap to cover his inexperienced ass.
> I had two heart specialist shrug their shoulders over my unrelated
> high blood pressure episodes that were mimicking a heart attack. I
> finally figured out on my own I was being over dosed a beta blocker BP
> med. The number of times I've discovered the doctor claiming all
> omnipotent knowledge is really a total moron are too numerous to
> relate, here.

I'm with you there! Most of the Drs. I've seen have not only been clueless
about the side effects of meds but also which one ones should not be taken
with various other medical conditions.

"Janet" > wrote in message
t...
> In article >,
> says...
>>
>> On 2013-10-31, Ed Pawlowski > wrote:
>>
>> > One of the most valuable resources is people actually living with the
>> > same condition you have.
>
> and one of the commonest mistakes people make when speaking to
> strangers on the net, is the assumption that matching symptoms or
> medication means the other person shares the same medical condition.

How do you know that people assume that though? Hearing about someone else
and their symptoms/medication etc. is simply food for thought, something for
one to research or ask a professional opinion, unless you are assuming that
people are just stupid.

Cheri

"notbob" > wrote in message
...
> On 2013-11-01, Janet Bostwick > wrote:
>
>> I read all the info sheets and follow them to the letter. I don't ask
>> friends, neighbors and newsgroups about what I should do.
>> Call the doctor.
>
> Your trust is touching, but I've learned the hard way that too many
> doctors don't know their ass from a hole in the ground. I suffered
> three such doctors in my bout with gout. One clueless pup had me
> endure a totally pointless spinal tap to cover his inexperienced ass.
> I had two heart specialist shrug their shoulders over my unrelated
> high blood pressure episodes that were mimicking a heart attack. I
> finally figured out on my own I was being over dosed a beta blocker BP
> med. The number of times I've discovered the doctor claiming all
> omnipotent knowledge is really a total moron are too numerous to
> relate, here.
>
> nb

Too true. You have to be an advocate for yourself and keep an eye on the
docs too. I could tell a couple of my own horror stories, but I won't bore
people with the details. It was a great learning experience though.

Cheri

On Thu, 31 Oct 2013 20:27:21 -0700, "Julie Bove"
> wrote:

>
> "notbob" > wrote in message
> ...
> > On 2013-11-01, Janet Bostwick > wrote:
> >
> >> I read all the info sheets and follow them to the letter. I don't ask
> >> friends, neighbors and newsgroups about what I should do.
> >> Call the doctor.
> >
> > Your trust is touching, but I've learned the hard way that too many
> > doctors don't know their ass from a hole in the ground. I suffered
> > three such doctors in my bout with gout. One clueless pup had me
> > endure a totally pointless spinal tap to cover his inexperienced ass.
> > I had two heart specialist shrug their shoulders over my unrelated
> > high blood pressure episodes that were mimicking a heart attack. I
> > finally figured out on my own I was being over dosed a beta blocker BP
> > med. The number of times I've discovered the doctor claiming all
> > omnipotent knowledge is really a total moron are too numerous to
> > relate, here.
>
> I'm with you there! Most of the Drs. I've seen have not only been clueless
> about the side effects of meds but also which one ones should not be taken
> with various other medical conditions.

That's why you should get all your meds from the same pharmacy,
because your fail safe if your pharmacist.

--
Food is an important part of a balanced diet.

"sf" > wrote in message
...
> On Thu, 31 Oct 2013 20:27:21 -0700, "Julie Bove"
> > wrote:
>
>>
>> "notbob" > wrote in message
>> ...
>> > On 2013-11-01, Janet Bostwick > wrote:
>> >
>> >> I read all the info sheets and follow them to the letter. I don't ask
>> >> friends, neighbors and newsgroups about what I should do.
>> >> Call the doctor.
>> >
>> > Your trust is touching, but I've learned the hard way that too many
>> > doctors don't know their ass from a hole in the ground. I suffered
>> > three such doctors in my bout with gout. One clueless pup had me
>> > endure a totally pointless spinal tap to cover his inexperienced ass.
>> > I had two heart specialist shrug their shoulders over my unrelated
>> > high blood pressure episodes that were mimicking a heart attack. I
>> > finally figured out on my own I was being over dosed a beta blocker BP
>> > med. The number of times I've discovered the doctor claiming all
>> > omnipotent knowledge is really a total moron are too numerous to
>> > relate, here.
>>
>> I'm with you there! Most of the Drs. I've seen have not only been
>> clueless
>> about the side effects of meds but also which one ones should not be
>> taken
>> with various other medical conditions.
>
> That's why you should get all your meds from the same pharmacy,
> because your fail safe if your pharmacist.

I do! But the pharmacist never catches this either.

In article >, says...

> But the problem I have run into there, is that each Dr. thinks I have a
> different thing.

Given how this group sees you continually change your previous
versions of your own life events, symptoms and illnesses, it would not
be surprising if you recount different versions of your symptoms and
illnesses to each different doctor.

Janet UK

"Janet" > wrote in message
t...
> In article >, says...
>
>> But the problem I have run into there, is that each Dr. thinks I have a
>> different thing.
>
> Given how this group sees you continually change your previous
> versions of your own life events, symptoms and illnesses, it would not
> be surprising if you recount different versions of your symptoms and
> illnesses to each different doctor.

Uh... No. Part of this group *thinks* they see that. I do not have just
one medical problem. I have quite a few. And life is ever changing. Seems
that if I post one thing here, some in this group think that every day of my
life is like that. Perhaps because there is so much sameness in their own
lives? Dunno.

> wrote in message
news
> On Thu, 31 Oct 2013 21:32:56 -0700, "Cheri" >
> wrote:
>
>>"Janet" > wrote in message
. net...
>>> In article >,
>>> says...
>>>>
>>>> On 2013-10-31, Ed Pawlowski > wrote:
>>>>
>>>> > One of the most valuable resources is people actually living with the
>>>> > same condition you have.
>>>
>>> and one of the commonest mistakes people make when speaking to
>>> strangers on the net, is the assumption that matching symptoms or
>>> medication means the other person shares the same medical condition.
>>
>>How do you know that people assume that though? Hearing about someone else
>>and their symptoms/medication etc. is simply food for thought, something
>>for
>>one to research or ask a professional opinion, unless you are assuming
>>that
>>people are just stupid.
>>
>>Cheri
>
> Plus, often just hearing from other sufferers can be very comforting
> for some people - there are masses of newsgroups for various medical
> afflictions, for just that reason.

Yes. Especially if you are having some weird to you symptom and then you
find out that you are not alone.

On 1 Nov 2013 01:02:11 GMT, notbob > wrote:

>On 2013-11-01, Janet Bostwick > wrote:
>
>> I read all the info sheets and follow them to the letter. I don't ask
>> friends, neighbors and newsgroups about what I should do.
>> Call the doctor.
>
>Your trust is touching, but I've learned the hard way that too many
>doctors don't know their ass from a hole in the ground. I suffered
>three such doctors in my bout with gout. One clueless pup had me
>endure a totally pointless spinal tap to cover his inexperienced ass.
>I had two heart specialist shrug their shoulders over my unrelated
>high blood pressure episodes that were mimicking a heart attack. I
>finally figured out on my own I was being over dosed a beta blocker BP
>med. The number of times I've discovered the doctor claiming all
>omnipotent knowledge is really a total moron are too numerous to
>relate, here.
>
>nb
>
In general, I understand what you are saying. However, the drug sheet
in this case says if you have diarrhea, call your doctor immediately.
What is hard to understand about that? Here is the info for health
care professionals.

For Healthcare Professionals

Applies to colchicine: compounding powder, intravenous solution, oral
tablet

Gastrointestinal

Gastrointestinal side effects have included diarrhea, nausea,
vomiting, and abdominal pain in nearly 80% of treated patients, and
can be indicative of acute colchicine (the active ingredient contained
in Colcrys) toxicity. Anorexia, electrolyte disturbance, pancreatitis,
and paralytic ileus may also occur, and steatorrhea and enzyme
inhibition have been reported in patients on long-term colchicine
prophylaxis.

Now, why would you mess around with asking at a newsgroup first before
calling your doctor?

usually the drug sheets say something like 'if the symptom persists
for x number of days, call your doctor' This drug sheet does not
equivocate.
Janet US

On 2013-11-01, Janet Bostwick > wrote:

> In general, I understand what you are saying. However, the drug sheet
> in this case says if you have diarrhea, call your doctor immediately.
> What is hard to understand about that?

Not a thing. It's a simple legal disclaimer to release the pharma
company from ANY responsibility. Hey, if you wake up and it's dark,
call your doctor immediately! Whew! ....we're covered.

nb

On Thu, 31 Oct 2013 23:35:57 -0700, "Julie Bove"
> wrote:

> > That's why you should get all your meds from the same pharmacy,
> > because your fail safe is your pharmacist.
>
> I do! But the pharmacist never catches this either.

Sounds like you're not changing your doctor, so change pharmacies.


--
Food is an important part of a balanced diet.

On 1 Nov 2013 15:52:00 GMT, notbob > wrote:

> On 2013-11-01, Janet Bostwick > wrote:
>
> > In general, I understand what you are saying. However, the drug sheet
> > in this case says if you have diarrhea, call your doctor immediately.
> > What is hard to understand about that?
>
> Not a thing. It's a simple legal disclaimer to release the pharma
> company from ANY responsibility. Hey, if you wake up and it's dark,
> call your doctor immediately! Whew! ....we're covered.
>
I was taking a drug for something or other. The second or third
refill, I read the drug sheet and realized I was experiencing one of
the side effects (which wasn't going away). I called the doctor about
it, she immediately switched medications and the side effect
disappeared.


--
Food is an important part of a balanced diet.

On Fri, 01 Nov 2013 09:05:23 -0600, Janet Bostwick
> wrote:

>On 1 Nov 2013 01:02:11 GMT, notbob > wrote:
>
>>On 2013-11-01, Janet Bostwick > wrote:
>>
>>> I read all the info sheets and follow them to the letter. I don't ask
>>> friends, neighbors and newsgroups about what I should do.
>>> Call the doctor.
>>
>>Your trust is touching, but I've learned the hard way that too many
>>doctors don't know their ass from a hole in the ground. I suffered
>>three such doctors in my bout with gout. One clueless pup had me
>>endure a totally pointless spinal tap to cover his inexperienced ass.
>>I had two heart specialist shrug their shoulders over my unrelated
>>high blood pressure episodes that were mimicking a heart attack. I
>>finally figured out on my own I was being over dosed a beta blocker BP
>>med. The number of times I've discovered the doctor claiming all
>>omnipotent knowledge is really a total moron are too numerous to
>>relate, here.
>>
>>nb
>>
>In general, I understand what you are saying. However, the drug sheet
>in this case says if you have diarrhea, call your doctor immediately.
>What is hard to understand about that? Here is the info for health
>care professionals.
>
>For Healthcare Professionals
>
>Applies to colchicine: compounding powder, intravenous solution, oral
>tablet
>
>Gastrointestinal
>
>Gastrointestinal side effects have included diarrhea, nausea,
>vomiting, and abdominal pain in nearly 80% of treated patients, and
>can be indicative of acute colchicine (the active ingredient contained
>in Colcrys) toxicity. Anorexia, electrolyte disturbance, pancreatitis,
>and paralytic ileus may also occur, and steatorrhea and enzyme
>inhibition have been reported in patients on long-term colchicine
>prophylaxis.
>
>Now, why would you mess around with asking at a newsgroup first before
>calling your doctor?
>
>usually the drug sheets say something like 'if the symptom persists
>for x number of days, call your doctor' This drug sheet does not
>equivocate.
>Janet US

For the record, I am not having diarrhea this time. (loose stool would
be more accurate) Although I didn't spell it out, I took 3 Colcry last
bout because the instructions say to take 1 per hour up to 5. I
learned last time that more than one does cause "explosive diarrhea"

I do not use the Internet for medical advice. It was more of a water
cooler type question.

Thanks for all your help.

BTW I also learned months before my transplant not to read any of the
consent forms I was given to sign at the hospital. They do have a
pretty inclusive list of stuff that can go wrong.


Want to convince yourself you are dying? Google your symptoms on the
Internet.

On Friday, November 1, 2013 9:06:02 AM UTC-7, sf wrote:
> On Thu, 31 Oct 2013 23:35:57 -0700, "Julie Bove"
>
> > wrote:
>
>
>
> > > That's why you should get all your meds from the same pharmacy,
>
> > > because your fail safe is your pharmacist.
>
> >
>
> > I do! But the pharmacist never catches this either.
>
>
>
> Sounds like you're not changing your doctor, so change pharmacies.
>
>
>
>
>
> --
>
> Food is an important part of a balanced diet.

Agreed!

On 10/31/13 5:49 PM, Ed Pawlowski wrote:

> He said he had the shits and wondered if that was part of the cure.
> Liver did not factor into his rush to the bathroom.
>
Livers certainly do factor in to metabolizing of meds, for one thing.

On Sat, 02 Nov 2013 03:20:53 -0400, Goomba >
wrote:

>On 10/31/13 5:49 PM, Ed Pawlowski wrote:
>
>> He said he had the shits and wondered if that was part of the cure.
>> Liver did not factor into his rush to the bathroom.
>>
>Livers certainly do factor in to metabolizing of meds, for one thing.

That may be an important piece of information. Rather than just
chastise a person for asking on a cooking group, you could have taken
the opportunity to mention that to him and let him know that he should
talk to his doctor about the problem. That is what I think a medical
professional should do, but since I'm not one, I won't give that
advice.

In article >,
Metspitzer > wrote:
> The doctor warned that the Colcry makes you go to the bathroom, but
> what I am wondering is that is the going to the bathroom a side effect
> of the meds or is that going to the bathroom what stops the gout pain.

Ask your pharmacist.
--
Barb,
http://www.barbschaller.com, as of April 8, 2013.

In article >,
says...
>
> On Sat, 02 Nov 2013 03:20:53 -0400, Goomba >
> wrote:
>
> >On 10/31/13 5:49 PM, Ed Pawlowski wrote:
> >
> >> He said he had the shits and wondered if that was part of the cure.
> >> Liver did not factor into his rush to the bathroom.
> >>
> >Livers certainly do factor in to metabolizing of meds, for one thing.
>
> That may be an important piece of information. Rather than just
> chastise a person for asking on a cooking group, you could have taken
> the opportunity to mention that to him and let him know that he should
> talk to his doctor about the problem. That is what I think a medical
> professional should do,

And that's exactly what she did, twice, about 70 posts ago, when she
posted

"isn't that a question you should ask your Dr

then

"Anyone who says he's had a liver transplant needs to refer his med
questions to his doctor. Too many reasons why to bother listing.
Goomba -a critical care nurse"

as you should recall, since you responded to that post.

In yet another post Goomba further underlined that he needed medication
advice specific to liver transplant and its implications, with

"How many others here have had a LIVER TRANSPLANT and can speak about
gout meds and implications with any experience? Really???"


Janet UK

Janet wrote:
>
> "How many others here have had a LIVER TRANSPLANT and can speak about
> gout meds and implications with any experience? Really???"

I have a close friend that had a kidney transplant. One thing I've
since learned is that she has to take "immune suppressing drugs" so
her body won't reject the transplant. In effect, she's taking drugs
that simmulate AIDS. She's suseptible to any new problems and has to
be really careful about being exposed to germs/viruses. I've also
learned that a kidney transplant isn't the final solution....the
average transplant only lasts about 7 years. Record is 30 years.

It's a sad thing for someone that has to deal with that.

G.

Melba's Jammin' wrote:
> Metspitzer wrote:
>>
>> The doctor warned that the Colcry makes you go to the bathroom, but
>> what I am wondering is that is the going to the bathroom a side effect
>> of the meds or is that going to the bathroom what stops the gout pain.
>
>Ask your pharmacist.

You rang?
http://www.goodrx.com/colcrys/side-effects

WTF is wrong with people... they have the whole world at their
keyboard... took me five seconds to find that info.

On Sat, 02 Nov 2013 11:48:57 -0500, Gary > wrote:

>Janet wrote:
>>
>> "How many others here have had a LIVER TRANSPLANT and can speak about
>> gout meds and implications with any experience? Really???"
>
>I have a close friend that had a kidney transplant. One thing I've
>since learned is that she has to take "immune suppressing drugs" so
>her body won't reject the transplant. In effect, she's taking drugs
>that simmulate AIDS. She's suseptible to any new problems and has to
>be really careful about being exposed to germs/viruses. I've also
>learned that a kidney transplant isn't the final solution....the
>average transplant only lasts about 7 years. Record is 30 years.
>
>It's a sad thing for someone that has to deal with that.

So what... life is not guaranteed and no one lives forever, like my
Vet says everyone dies of something... if Gary lives 7 more years he's
very lucky. I consider each day a gift.

wrote in message ...

On Sat, 02 Nov 2013 11:48:57 -0500, Gary > wrote:

>Janet wrote:
>>
>> "How many others here have had a LIVER TRANSPLANT and can speak about
>> gout meds and implications with any experience? Really???"
>
>I have a close friend that had a kidney transplant. One thing I've
>since learned is that she has to take "immune suppressing drugs" so
>her body won't reject the transplant. In effect, she's taking drugs
>that simmulate AIDS. She's suseptible to any new problems and has to
>be really careful about being exposed to germs/viruses. I've also
>learned that a kidney transplant isn't the final solution....the
>average transplant only lasts about 7 years. Record is 30 years.
>
>It's a sad thing for someone that has to deal with that.
>
>G.

Yes, I have a friend looking for a kidney, I tried but they rejected
me because my creatinine level wasn't good enough I guess. Same thing
with two other potential donors.

I urge people to offer, it seems so cruel that one has not appeared.
Her life is one long stay on dialysis, not much of a life.

Another person I knew had a liver transplant that lasted 32 years
until last spring when it kicked up. He was lucky that another liver
was found fairly quickly but he contracted an infection and died.

___________________________

That's sad. There is a couple in my church that the husband needed a
transplant and she was compatible as a donor. Their surgery was the first
week in August and they've been back for about three weeks. They are both
doing well.

Sharon in Canada

In article >,
Brooklyn1 > wrote:

> Melba's Jammin' wrote:
> > Metspitzer wrote:
> >>
> >> The doctor warned that the Colcry makes you go to the bathroom, but
> >> what I am wondering is that is the going to the bathroom a side effect
> >> of the meds or is that going to the bathroom what stops the gout pain.
> >
> >Ask your pharmacist.
>
> You rang?
> http://www.goodrx.com/colcrys/side-effects
>
> WTF is wrong with people... they have the whole world at their
> keyboard... took me five seconds to find that info.

WTF is wrong? Lazy. Pure and simple.
--
Barb,
http://www.barbschaller.com, as of April 8, 2013.

On 11/2/2013 11:39 AM, Janet wrote:

> And that's exactly what she did, twice, about 70 posts ago, when she
> posted
>
> "isn't that a question you should ask your Dr
>
> then
>
> "Anyone who says he's had a liver transplant needs to refer his med
> questions to his doctor. Too many reasons why to bother listing.
> Goomba -a critical care nurse"
>
> as you should recall, since you responded to that post.

I see you left out the condescending part though, where she took the OP
to task for even asking. But if you narrow down the question asked, it
does not need a doctor to answer. Other aspects of the situation perhaps
should.

We should take such opportunities to help and educate rather than
reprimand. But hey, that is my opinion, you can think otherwise.

"Gary" > wrote in message ...
> Janet wrote:
>>
>> "How many others here have had a LIVER TRANSPLANT and can speak about
>> gout meds and implications with any experience? Really???"
>
> I have a close friend that had a kidney transplant. One thing I've
> since learned is that she has to take "immune suppressing drugs" so
> her body won't reject the transplant. In effect, she's taking drugs
> that simmulate AIDS. She's suseptible to any new problems and has to
> be really careful about being exposed to germs/viruses. I've also
> learned that a kidney transplant isn't the final solution....the
> average transplant only lasts about 7 years. Record is 30 years.
>
> It's a sad thing for someone that has to deal with that.
>
> G.

My friend had a kidney transplant but sadly, her body rejected it.

On 10/31/2013 8:42 PM, Julie Bove wrote:

> But the problem I have run into there, is that each Dr. thinks I have a
> different thing. One said psoriatic arthritis. Another said it is not
> that but fibromyalgia. Still another said neither of those things but
> venous insufficiency which I believe that I do have. But I also believe
> that at times I have had the fibromyalgia as well. It can get
> frustrating when one Dr. tells me not to listen to another Dr. and only
> listen to him/her. I don't think I have had psoriatic arthritis but
> that is the diagnosis that he gave me. Verbally he also told me that I
> had fibromyalgia but he put on the paper that it is psoriatic
> arthritis. But two other Drs. did at least agree on the fibro. which I
> believe is only a symptom and not an actual syndrome or disease. But I
> could be wrong on that.

I think I also have fibromyalgia mostly because I'm on Lyrica for the
foot nerve pain and ever since then, the shoulder pain has gone away. I
went for at least 2 steroid injections in my shoulder for the pain which
had a little effect, but since Lyrica, I don't get that pain at all.

--
CAPSLOCK–Preventing Login Since 1980.

"Cheryl" > wrote in message
eb.com...
> On 10/31/2013 8:42 PM, Julie Bove wrote:
>
>> But the problem I have run into there, is that each Dr. thinks I have a
>> different thing. One said psoriatic arthritis. Another said it is not
>> that but fibromyalgia. Still another said neither of those things but
>> venous insufficiency which I believe that I do have. But I also believe
>> that at times I have had the fibromyalgia as well. It can get
>> frustrating when one Dr. tells me not to listen to another Dr. and only
>> listen to him/her. I don't think I have had psoriatic arthritis but
>> that is the diagnosis that he gave me. Verbally he also told me that I
>> had fibromyalgia but he put on the paper that it is psoriatic
>> arthritis. But two other Drs. did at least agree on the fibro. which I
>> believe is only a symptom and not an actual syndrome or disease. But I
>> could be wrong on that.
>
> I think I also have fibromyalgia mostly because I'm on Lyrica for the foot
> nerve pain and ever since then, the shoulder pain has gone away. I went
> for at least 2 steroid injections in my shoulder for the pain which had a
> little effect, but since Lyrica, I don't get that pain at all.

Lyrica scares me. I'd rather have the nerve pain. A guy on the diabetes
newsgroup took it and he would refer to the pill taking time as time to get
high. I don't like that feeling. Makes me totally non-functional.