"Ed Pawlowski" > wrote in message
...
> On 11/2/2013 11:39 AM, Janet wrote:
>
>> And that's exactly what she did, twice, about 70 posts ago, when she
>> posted
>>
>> "isn't that a question you should ask your Dr
>>
>> then
>>
>> "Anyone who says he's had a liver transplant needs to refer his med
>> questions to his doctor. Too many reasons why to bother listing.
>> Goomba -a critical care nurse"
>>
>> as you should recall, since you responded to that post.
>
> I see you left out the condescending part though, where she took the OP to
> task for even asking. But if you narrow down the question asked, it does
> not need a doctor to answer. Other aspects of the situation perhaps
> should.
>
> We should take such opportunities to help and educate rather than
> reprimand. But hey, that is my opinion, you can think otherwise.

Quite right, Barb.

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"Cheryl" > wrote in message
eb.com...
> On 10/31/2013 8:42 PM, Julie Bove wrote:
>
>> But the problem I have run into there, is that each Dr. thinks I have a
>> different thing. One said psoriatic arthritis. Another said it is not
>> that but fibromyalgia. Still another said neither of those things but
>> venous insufficiency which I believe that I do have. But I also believe
>> that at times I have had the fibromyalgia as well. It can get
>> frustrating when one Dr. tells me not to listen to another Dr. and only
>> listen to him/her. I don't think I have had psoriatic arthritis but
>> that is the diagnosis that he gave me. Verbally he also told me that I
>> had fibromyalgia but he put on the paper that it is psoriatic
>> arthritis. But two other Drs. did at least agree on the fibro. which I
>> believe is only a symptom and not an actual syndrome or disease. But I
>> could be wrong on that.
>
> I think I also have fibromyalgia mostly because I'm on Lyrica for the foot
> nerve pain and ever since then, the shoulder pain has gone away. I went
> for at least 2 steroid injections in my shoulder for the pain which had a
> little effect, but since Lyrica, I don't get that pain at all.

Ace!!!! Whatever works eh? ))

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On 11/3/2013 2:22 AM, Julie Bove wrote:
>
> Lyrica scares me. I'd rather have the nerve pain. A guy on the
> diabetes newsgroup took it and he would refer to the pill taking time as
> time to get high. I don't like that feeling. Makes me totally
> non-functional.

It doesn't have that effect on me. Everyone is different.

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Hang in there - Doctor Bove will be answering you shortly, if she hasn't already. (Can you sing the Twilight Zone theme for her entrance?)

On Friday, November 1, 2013 2:35:57 AM UTC-4, Julie Bove wrote:
> "sf" > wrote in message
>
> ...
>
> > On Thu, 31 Oct 2013 20:27:21 -0700, "Julie Bove"
>
> > > wrote:
>
> >
>
> >>
>
> >> "notbob" > wrote in message
>
> >> ...
>
> >> > On 2013-11-01, Janet Bostwick > wrote:
>
> >> >
>
> >> >> I read all the info sheets and follow them to the letter. I don't ask
>
> >> >> friends, neighbors and newsgroups about what I should do.
>
> >> >> Call the doctor.
>
> >> >
>
> >> > Your trust is touching, but I've learned the hard way that too many
>
> >> > doctors don't know their ass from a hole in the ground. I suffered
>
> >> > three such doctors in my bout with gout. One clueless pup had me
>
> >> > endure a totally pointless spinal tap to cover his inexperienced ass.
>
> >> > I had two heart specialist shrug their shoulders over my unrelated
>
> >> > high blood pressure episodes that were mimicking a heart attack. I
>
> >> > finally figured out on my own I was being over dosed a beta blocker BP
>
> >> > med. The number of times I've discovered the doctor claiming all
>
> >> > omnipotent knowledge is really a total moron are too numerous to
>
> >> > relate, here.
>
> >>
>
> >> I'm with you there! Most of the Drs. I've seen have not only been
>
> >> clueless
>
> >> about the side effects of meds but also which one ones should not be
>
> >> taken
>
> >> with various other medical conditions.
>
> >
>
> > That's why you should get all your meds from the same pharmacy,
>
> > because your fail safe if your pharmacist.
>
>
>
> I do! But the pharmacist never catches this either.

You obviously need that pharmaceutical psychic, if he or she can turn the collar from cat psychic for a while.

"Cheryl" > wrote in message
eb.com...
> On 11/3/2013 2:22 AM, Julie Bove wrote:
>>
>> Lyrica scares me. I'd rather have the nerve pain. A guy on the
>> diabetes newsgroup took it and he would refer to the pill taking time as
>> time to get high. I don't like that feeling. Makes me totally
>> non-functional.
>
> It doesn't have that effect on me. Everyone is different.

That's good. I tend to have obscure side effects from meds and can easily
have OD symptoms from small amounts of stuff. So I am leery to try things
that are new.

"Julie Bove" > wrote in message
...
>
> "Cheryl" > wrote in message
> eb.com...
>> On 11/3/2013 2:22 AM, Julie Bove wrote:
>>>
>>> Lyrica scares me. I'd rather have the nerve pain. A guy on the
>>> diabetes newsgroup took it and he would refer to the pill taking time as
>>> time to get high. I don't like that feeling. Makes me totally
>>> non-functional.
>>
>> It doesn't have that effect on me. Everyone is different.
>
> That's good. I tend to have obscure side effects from meds and can easily
> have OD symptoms from small amounts of stuff. So I am leery to try things
> that are new.


You also had to take Johnny with a grain of salt because he used to joke
about being high and setting fires when BBQing, blaring music at midnight
etc. just to annoy the neighbors, none of which was true, so I don't think
much of the Lyrica story was either.

Cheri

"Cheri" > wrote in message
...
> "Julie Bove" > wrote in message
> ...
>>
>> "Cheryl" > wrote in message
>> eb.com...
>>> On 11/3/2013 2:22 AM, Julie Bove wrote:
>>>>
>>>> Lyrica scares me. I'd rather have the nerve pain. A guy on the
>>>> diabetes newsgroup took it and he would refer to the pill taking time
>>>> as
>>>> time to get high. I don't like that feeling. Makes me totally
>>>> non-functional.
>>>
>>> It doesn't have that effect on me. Everyone is different.
>>
>> That's good. I tend to have obscure side effects from meds and can
>> easily have OD symptoms from small amounts of stuff. So I am leery to
>> try things that are new.
>
>
> You also had to take Johnny with a grain of salt because he used to joke
> about being high and setting fires when BBQing, blaring music at midnight
> etc. just to annoy the neighbors, none of which was true, so I don't think
> much of the Lyrica story was either.

Well, he was a comedian or presumably still is. But one of the things they
prescribed for my neuropathy did in fact made me quite high. Until it made
me suicidal. Oh, I don't want to remember that.

A few years ago, the FDA threaten to put the cherry growers out of business because they had the nerve to tell people that eating cherries and drinking cherry juice can cure gout. They said only drugs can cure. You can buy concentrated cherry juice in the health food store. Yes, certain food can bring on the pain.

Lucille


On Wednesday, October 30, 2013 10:24:03 PM UTC-4, Metspitzer wrote:
> I have been prescribed Allopurinol for gout. Since I have had a liver
>
> transplant, I only take 200mg of Allopurinol where, I am told, 300mg
>
> is the standard amount. Anyway I am also prescribed Colcry to take
>
> when the gout pain comes on. I am supposed to stop the Allopurinol
>
> and take the Colcry. The instructions on the bottle say to take 1 and
>
> then another one every hour (up to 5) until the pain is relieved. I
>
> tried that last time I had a flare up and spend day and night in the
>
> bathroom.
>
>
>
> The doctor warned that the Colcry makes you go to the bathroom, but
>
> what I am wondering is that is the going to the bathroom a side effect
>
> of the meds or is that going to the bathroom what stops the gout pain.

"Lucille" > wrote in message
...
A few years ago, the FDA threaten to put the cherry growers out of business
because they had the nerve to tell people that eating cherries and drinking
cherry juice can cure gout. They said only drugs can cure. You can buy
concentrated cherry juice in the health food store. Yes, certain food can
bring on the pain.

Lucille

Nothing cures gout. Not even cherries. But cherries can help just as other
things can. What is my definition of a cure? Make it go away and stay
away. Gout pretty much always comes back.

"Kalmia" > wrote in message
...
> Hang in there - Doctor Bove will be answering you shortly, if she hasn't
> already. (Can you sing the Twilight Zone theme for her entrance?)

Bitch

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On 11/2/2013 11:53 PM, Julie Bove wrote:
>
> "Gary" > wrote in message
> ...
>> Janet wrote:
>>>
>>> "How many others here have had a LIVER TRANSPLANT and can speak about
>>> gout meds and implications with any experience? Really???"
>>
>> I have a close friend that had a kidney transplant. One thing I've
>> since learned is that she has to take "immune suppressing drugs" so
>> her body won't reject the transplant. In effect, she's taking drugs
>> that simmulate AIDS. She's suseptible to any new problems and has to
>> be really careful about being exposed to germs/viruses. I've also
>> learned that a kidney transplant isn't the final solution....the
>> average transplant only lasts about 7 years. Record is 30 years.
>>
>> It's a sad thing for someone that has to deal with that.
>>
>> G.
>
> My friend had a kidney transplant but sadly, her body rejected it.

A family member (brother's in-laws) has a rare disease where she needs a
lung transplant. Apparently it's hard to get on the list. She has a
disease called Lymphangioleiomyomatosis (LAM). As it is now, she is on
constant oxygen which she has to lug around at all times or else she
cannot breathe. Very sad as she's only in her 30s and has 2 young children.

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