Our DD (9 months old) has a family history of celiac, and reacts when I eat
wheat or oats. We'd like to get her tested for celiac, but the blood test
requires 6 weeks of gluten consumption by both of us. The plan is for me to try
barley, and if she isn't bothered by me eating it, to feed it to her. If she's
fine with that, then we both stick with it until the test is done. If she
reacts, we quit.

I need some baby-friendly barley recipes. She can't have dairy (of any variety,
due to known allergy), peanuts / tree nuts / seeds, shellfish, soy, wheat or
oats. She does fine with rice, potato, apple, banana, pear, sweet potato,
orange squash, carrot, celery, and beets. Anything else is negotiable, but I'm
unlikely to give her any highly allergenic food, or the acidic foods (tomatoes,
citrus, etc.) that give even older kids trouble.

She has no pincer grip, so finger food has to be in big enough chunks to stick
out of her fist. She's not a big fan of texture unless it's a finger food or
she can take bites off it while someone else holds it. I think she'll be able
to gum up cooked barley if she likes it. The goal isn't to get large quantities
into her; just some every day.

Thanks!

Phoebe

Phoebe & Allyson wrote:
> Our DD (9 months old) has a family history of celiac, and reacts when I
> eat wheat or oats. We'd like to get her tested for celiac, but the
> blood test requires 6 weeks of gluten consumption by both of us. The
> plan is for me to try barley, and if she isn't bothered by me eating it,
> to feed it to her. If she's fine with that, then we both stick with it
> until the test is done. If she reacts, we quit.
>
> I need some baby-friendly barley recipes. She can't have dairy (of any
> variety, due to known allergy), peanuts / tree nuts / seeds, shellfish,
> soy, wheat or oats. She does fine with rice, potato, apple, banana,
> pear, sweet potato, orange squash, carrot, celery, and beets. Anything
> else is negotiable, but I'm unlikely to give her any highly allergenic
> food, or the acidic foods (tomatoes, citrus, etc.) that give even older
> kids trouble.
>
> She has no pincer grip, so finger food has to be in big enough chunks to
> stick out of her fist. She's not a big fan of texture unless it's a
> finger food or she can take bites off it while someone else holds it. I
> think she'll be able to gum up cooked barley if she likes it. The goal
> isn't to get large quantities into her; just some every day.
>
> Thanks!
>
> Phoebe
>

Hi Phoebe,
Why did you pick barley? It contains a lot more gluten than oats.

Try rice. Especially brown rice, because it more nutritous than white
rice, and stickier so it will be easier to eat using ones fingers.

Best regards,
Bob

zxcvbob wrote:

> Why did you pick barley? It contains a lot more gluten than oats.

Because I can't feed her wheat or oats, I can't imagine eating straight rye for
6 weeks, and barley is the only common gluten-containing grain left. She has to
consume gluten for the blood test to be accurate.

> Try rice. Especially brown rice, because it more nutritous than white
> rice, and stickier so it will be easier to eat using ones fingers.

She likes rice. Rice doesn't solve the problem. If you have a tasty recipe for
rye-based baby food, that'd work, though.

Phoebe

Phoebe & Allyson wrote:
>

> She likes rice. Rice doesn't solve the problem. If you have a tasty recipe for
> rye-based baby food, that'd work, though.
>
> Phoebe

I'm glad you're smiling. Sometimes it is best to just post a specific
question and not give the why behind it a chance to bring out social
commentary. I'm still getting used to the pinched looks I get for my
life with baby. I'm an oddball, and people seem pretty tolerate of it,
but be an oddball with a baby and all their reactionariness comes out.
I've gotten comments about how he'll turn out ranging from homosexual to
murderous marine (because I don't cut his hair, don't mind pink stuff on
him...and he has such a "girlish face" people call him her even in
Builder Bob outfits... and have him do very physical things, "hardening"
things, which he loves and never acts sore or injured from, and I let
him get very muddy and grubby. Even if it is only 50 out, and his
sleeves are soaked, any happy running child who screams when it is time
to come in is warm enough to stand 30 minutes outside). I just sigh and
remember I live in the kind of place where people say, without a blink,
that there are more mentally retarded children born from "mixed"
marriages. A mother needs the heart of mama cat and the hide of hippo.
Best of luck.
blacksalt

kalanamak wrote:

> A mother needs the heart of mama cat and the hide of hippo.
> Best of luck.

Thanks. I suspect there are going to be lots of other instances where being
thick-skinned will come in handy, but I've found it to be particularly true for
kids with health issues. You have to be able to do your own research or rely on
random chance.

Phoebe

In article >,
Phoebe & Allyson > wrote:

> Our DD (9 months old) has a family history of celiac, and reacts when I eat
> wheat or oats. We'd like to get her tested for celiac, but the blood test
> requires 6 weeks of gluten consumption by both of us. The plan is for me to
> try
> barley, and if she isn't bothered by me eating it, to feed it to her. If
> she's
> fine with that, then we both stick with it until the test is done. If she
> reacts, we quit.
>
> I need some baby-friendly barley recipes. She can't have dairy (of any
> variety,
> due to known allergy), peanuts / tree nuts / seeds, shellfish, soy, wheat or
> oats. She does fine with rice, potato, apple, banana, pear, sweet potato,
> orange squash, carrot, celery, and beets. Anything else is negotiable, but
> I'm
> unlikely to give her any highly allergenic food, or the acidic foods
> (tomatoes,
> citrus, etc.) that give even older kids trouble.
>
> She has no pincer grip, so finger food has to be in big enough chunks to
> stick
> out of her fist. She's not a big fan of texture unless it's a finger food or
> she can take bites off it while someone else holds it. I think she'll be
> able
> to gum up cooked barley if she likes it. The goal isn't to get large
> quantities
> into her; just some every day.
>
Phoebe,

Barley is a forbidden food for celiacs. Please don't try it.

Cindy

--
C.J. Fuller

Delete the obvious to email me

Cindy Fuller wrote:
> In article >,
> Phoebe & Allyson > wrote:
>
>> We'd like to get her tested for celiac,
>> but the blood test requires 6 weeks of gluten consumption by both of
>> us.

> Barley is a forbidden food for celiacs. Please don't try it.

Heck, even adults with much more definitive symptoms aren't advised to go
gluten-free without an intestinal biopsy (or at least positive bloodwork) ,
and babies who are diagnosed before the age of 2 are advised to have a
gluten challenge followed by biopsy sometime after the age of 2 to rule out
transient gluten intolerance.

Not to mention the chance that she's allergic to wheat. Since oats are a
big question-mark and the odds of cross-contamination with wheat are high,
the only reason I'd suspect celiac over a wheat allergy is family history -
and family history isn't a very good predictor.

Phoebe
--
yahoo address is unread; substitute mailbolt

In article
>,
Cindy Fuller > wrote:

> In article >,
> Phoebe & Allyson > wrote:
>
> > Our DD (9 months old) has a family history of celiac, and reacts when I eat
> > wheat or oats. We'd like to get her tested for celiac, but the blood test
> > requires 6 weeks of gluten consumption by both of us. The plan is for me
> > to
> > try
> > barley, and if she isn't bothered by me eating it, to feed it to her. If
> > she's
> > fine with that, then we both stick with it until the test is done. If she
> > reacts, we quit.
> >
> > I need some baby-friendly barley recipes. She can't have dairy (of any
> > variety,
> > due to known allergy), peanuts / tree nuts / seeds, shellfish, soy, wheat
> > or
> > oats. She does fine with rice, potato, apple, banana, pear, sweet potato,
> > orange squash, carrot, celery, and beets. Anything else is negotiable, but
> > I'm
> > unlikely to give her any highly allergenic food, or the acidic foods
> > (tomatoes,
> > citrus, etc.) that give even older kids trouble.
> >
> > She has no pincer grip, so finger food has to be in big enough chunks to
> > stick
> > out of her fist. She's not a big fan of texture unless it's a finger food
> > or
> > she can take bites off it while someone else holds it. I think she'll be
> > able
> > to gum up cooked barley if she likes it. The goal isn't to get large
> > quantities
> > into her; just some every day.
> >
> Phoebe,
>
> Barley is a forbidden food for celiacs. Please don't try it.
>
> Cindy


What I'm wondering is why she wants to push it?
If the baby has already shown an allergy to wheat, what is she trying to
prove?

K.

--
Sprout the Mung Bean to reply...

>,,<Cat's Haven Hobby Farm>,,<Katra at centurytel dot net>,,<
http://cgi6.ebay.com/ws/eBayISAPI.dl...user id=katra

Katra wrote:

> If the baby has already shown an allergy to wheat, what is she trying to
> prove?

The baby doesn't have a diagnosed allergy to wheat. She has a reaction of
unknown cause to wheat, which we think might be an allergy or might be celiac.
I'm not going to feed her wheat, despite some poster's suggestions, because I
see no point.

However, there's a *good* reason to try and determine whether she has a wheat
allergy or celiac - it's the difference between "have a rice muffin" and "you
can't have the special rice muffins that Grandma made just for you, because
Grandma buys the wrong brand of vanilla."

Under the guidance of her pediatrician, we're attempting to make that determination.

Phoebe

On Fri, 27 Feb 2004 10:22:58 -0600, Phoebe & Allyson > wrote:

>Our DD (9 months old) has a family history of celiac, and reacts when I eat
>wheat or oats. We'd like to get her tested for celiac, but the blood test
>requires 6 weeks of gluten consumption by both of us. The plan is for me to try
>barley, and if she isn't bothered by me eating it, to feed it to her. If she's
>fine with that, then we both stick with it until the test is done. If she
>reacts, we quit.

do you really need the test? I mean you know she has problems with wheat and
such why do you need a test telling you there is a problem?
I am in the same boat I have problems now with wheat and corn. but to get the
test I would end up pretty sick.
so I rather just do what works (remove those items) then get a test and then
remove those items.
one thing in my searching I found Kefir really helps in allergy problems
relating to food. the stuff tastes good too (G)

--
Knight-Toolworks & Custom Planes
Custom made wooden planes at reasonable prices
See http://www.knight-toolworks.com For prices and ordering instructions.

Steve Knight wrote in message ...
>On Fri, 27 Feb 2004 10:22:58 -0600, Phoebe & Allyson >
wrote:
>
>>Our DD (9 months old) has a family history of celiac, and reacts when I
eat
>>wheat or oats. We'd like to get her tested for celiac, but the blood test
>>requires 6 weeks of gluten consumption by both of us. The plan is for me
to try
>>barley, and if she isn't bothered by me eating it, to feed it to her. If
she's
>>fine with that, then we both stick with it until the test is done. If she
>>reacts, we quit.
>
>do you really need the test? I mean you know she has problems with wheat
and
>such why do you need a test telling you there is a problem?
> I am in the same boat I have problems now with wheat and corn. but to get
the
>test I would end up pretty sick.
>so I rather just do what works (remove those items) then get a test and
then
>remove those items.
> one thing in my searching I found Kefir really helps in allergy problems
>relating to food. the stuff tastes good too (G)

Kefir is awesome! i like the plain stuff, but alot of people buy the fruit
flavored stuff we sell.

--
Saerah

TANSTAAFL

"Strange women lying in ponds distributing
swords is no basis for a system of government. Supreme executive
power derives from a mandate from the masses, not from some
farcical aquatic ceremony."

>From: "Saerah"

>Kefir is awesome! i like the plain stuff, but alot of people buy the fruit
>flavored stuff we sell.

I wish I could FIND plain Kefir without all the additives.

Ellen

In article >,
(SportKite1) wrote:

> >From: "Saerah"
>
> >Kefir is awesome! i like the plain stuff, but alot of people buy the fruit
> >flavored stuff we sell.
>
> I wish I could FIND plain Kefir without all the additives.
>
> Ellen
>
>

Uh, make your own???
What is kefir but thinned yogurt?

K.

--
Sprout the Mung Bean to reply...

>,,<Cat's Haven Hobby Farm>,,<Katra at centurytel dot net>,,<
http://cgi6.ebay.com/ws/eBayISAPI.dl...user id=katra

>From: Katra

>Uh, make your own???
>What is kefir but thinned yogurt?
>
>K.

It's different. But I meant, to stock in my store. Lifeway brand has too many
additives and Helios is unavailable in my area.

Ellen

O
>Uh, make your own???
>What is kefir but thinned yogurt?

nope it is different cultures. it uses kefir grains to make it. like little
cottage cheese pieces. you make it at room temp and it is not a pain like
yogurt. it's better for you too easier to make and not as sour. plus it gets
effervescence (G)

--
Knight-Toolworks & Custom Planes
Custom made wooden planes at reasonable prices
See http://www.knight-toolworks.com For prices and ordering instructions.

Katra > wrote in message >...
> In article >,
> (SportKite1) wrote:
>
> > >From: "Saerah"
>
> > >Kefir is awesome! i like the plain stuff, but alot of people buy the fruit
> > >flavored stuff we sell.
> >
> > I wish I could FIND plain Kefir without all the additives.
> >
> > Ellen
> >
> >
>
> Uh, make your own???
> What is kefir but thinned yogurt?
>
> K.

If you can get a starter kefir culture, sure you can make your own.
But it isn't the same as thinned yogurt; kefir fermentation involves a
different flora.

Trying to separate the facts from the claptrap in the kefir business
is probably a fool's errand, though.

--
Chris Green

On 28 Feb 2004 12:44:45 GMT, (SportKite1) wrote:

>>From: "Saerah"
>
>>Kefir is awesome! i like the plain stuff, but alot of people buy the fruit
>>flavored stuff we sell.
>
>I wish I could FIND plain Kefir without all the additives.
>

i am going to make it. it's dirt easy to do. You need to find some kefir
grains.
http://users.chariot.net.au/~dna/kef...t_kefir_grains
I found three people to get them from.


--
Knight-Toolworks & Custom Planes
Custom made wooden planes at reasonable prices
See http://www.knight-toolworks.com For prices and ordering instructions.

On Sat, 28 Feb 2004 00:08:39 -0500, "Saerah" > wrote:


>Kefir is awesome! i like the plain stuff, but alot of people buy the fruit
>flavored stuff we sell.

I am working on getting the grains to make it. very easy to do. far easier then
yogurt.

--
Knight-Toolworks & Custom Planes
Custom made wooden planes at reasonable prices
See http://www.knight-toolworks.com For prices and ordering instructions.

Steve Knight wrote:

> I mean you know she has problems with wheat and
> such why do you need a test telling you there is a problem?

We need a test to tell what the problem is.

> I am in the same boat I have problems now with wheat and corn. but to get the
> test I would end up pretty sick.

Since corn doesn't contain gluten, I suspect celiac isn't your problem.

> so I rather just do what works (remove those items)

Are you really, truly, saying that I should consign a 9-month-old to a lifetime
of "No, you can't have that rice flour muffin Grandma made especially for you,
because Grandma didn't call the vanilla manufacturer to find out if their
vanilla is made on dedicated gluten-free lines," rather than even attempt to
determine whether she has a (potentially transient) wheat allergy, transient
gluten intolerance, or celiac?

> one thing in my searching I found Kefir really helps in allergy problems
> relating to food.

I'll be sure and try that with DD, who I mentioned has a dairy allergy. Heaven
forbid I should try something she's never reacted to, when there's a known
allergen that would be really helpful.

Phoebe

O

>Since corn doesn't contain gluten, I suspect celiac isn't your problem.

not totally sure on the corn. since the only time I eat it is usually in the
form of popcorn. I know wheat is a problem.

>

>Are you really, truly, saying that I should consign a 9-month-old to a lifetime
>of "No, you can't have that rice flour muffin Grandma made especially for you,
>because Grandma didn't call the vanilla manufacturer to find out if their
>vanilla is made on dedicated gluten-free lines," rather than even attempt to
>determine whether she has a (potentially transient) wheat allergy, transient
>gluten intolerance, or celiac?
>
from what I have read tests my not tell either. its a real gray area.



--
Knight-Toolworks & Custom Planes
Custom made wooden planes at reasonable prices
See http://www.knight-toolworks.com For prices and ordering instructions.

Steve Knight wrote:

> not totally sure on the corn. since the only time I eat it is usually in the
> form of popcorn.

Corn is in pretty much everything, so even if you make all your food from
scratch, it's hard to avoid. There's a huge, huge difference between avoiding
obvious sources of corn (or wheat) and going completely corn-free (or gluten-free).

Phoebe

>Corn is in pretty much everything, so even if you make all your food from
>scratch, it's hard to avoid. There's a huge, huge difference between avoiding
>obvious sources of corn (or wheat) and going completely corn-free (or gluten-free).

I am trying grain free right now. if that does not help then I will go GF. the
kefir is helping out though.

--
Knight-Toolworks & Custom Planes
Custom made wooden planes at reasonable prices
See http://www.knight-toolworks.com For prices and ordering instructions.

Phoebe & Allyson wrote:

> She has no pincer grip, so finger food has to be in big enough chunks to stick
> out of her fist. She's not a big fan of texture unless it's a finger food or
> she can take bites off it while someone else holds it. I think she'll be able
> to gum up cooked barley if she likes it. The goal isn't to get large quantities
> into her; just some every day.

Barley is, for me, pretty tough. Gerber, as I recall, has one of those
instant cereal flakes made of barley. By nine months my guy, an early
eater of non-milk, got soft cubes of cooked veggies in a paste made of
such instant cereal mixed in with a little Gerber organic cauliflower
and brocc. paste (his favourite, now he won't touch it). If I were to
try and give barley in a non-instant flake to that age group, I'd "chip
it" (grind it very very coarsely) in a grain mill and cook a long time
in broth, even pressure cook it. Our "natural groceries" (those slick
huge things that grew out of the food co-ops I used to us back in the
70's) have rolled barley, like rolled oats. For baby I'd use pearled not
"pot barley". I find that tends to make even adults windy.
blacksalt

Phoebe & Allyson wrote:

> Thanks!
>
> Phoebe

Oh, and I've had "barley" grits, gotten at a Ukranian store.
Perhaps you could make "real" kasha (as opposed to the word kasha
meaning buckwheat).
Here is a cut and paste of a post of mine from years ago. You could use
almond milk instead of cow milk, or, if you are pumping, breast milk.
This was delicious and *soft*:
<begin paste>
With a recipe from an rfcer in hand, I made my first Kasha today.

I discovered that I had no double boiler approaching the size I needed,
so I took a Belgique (sp?) stock pot and plopped a curvy Belgique saute
pan on top. I really steamed it for 6 hours, and was interested in how
the dish changed with time, it's final sea-change at about 0500 hours.
It became a very thick dish. I thought that it would require salt, but
it did not, and I didn't have cream, but I think that butter (or perhaps
cream) is necessary for enjoyment. I used 1/2 a teaspoon for a cup of
the final product and that little bit's flavour really shone through, so
use a good butter.
The Barley, although very soft at the end, kept it's character of that
little vermis of fibre running it's length. The milk, though totally
dried and adhered to the barely, had little flavour, and did not take on
a kheer-like character. Of course it would have been different with
water or oil, but I don't think a fundamental browning of the milk
proteins is a central part of this dish
I liked this just plain, but I sense a heavy peppering and/or a blob of
jam heading towards the Hubs bowl.
tj
p.s. I just couldn't refrain from peeking and tasting.
p.p.s. I have a very odd cat that NEVER touches human food. She'll wolf
down tuna from a can, but has never taken a lap of milk, or a bite of
salmon, or swipe at the butter. Never! After I finished my bowl, I set
it down on the table near her (we're all jammed up next to the
computer). She arose from slumber, stretched extravagently, and then
PLUNGED her face into the empty bowl, cleaning the sides. I think this
speaks volumes.

<begin quote of recipe:>

Barley Kasha

This kind of kasha was Peter the Great's favourite. Try making it
sometime - I think you'll be surprised. It takes a _lot_ of time to
make, but requires very little actual work. Take note that it is
extremely important to maintain the proportions of the ingredients both
for soaking and for cooking.

1 glass (200 g/7.05 oz) pearl barley (large-sized)
1 litre (1.06 qt) water for soaking
2 litres (2.11 qt) milk
some heavy cream and butter

Soak the barley in cold water for 10-12 hours. Drain. Heat the milk in a
non-reactive saucepan to 40° C/104°F and add the barley. Heat on stove
top, uncovered, until the milk boils. Meanwhile boil water in a large
saucepan. As soon as the milk is boiling, cover the saucepan and place
it in the large saucepan with boiling water, i.e. bain-marie. Cook for 6
hours, adding water to the large saucepan if needed. Refrain from
opening the kasha saucepan. Take from heat and let stand for 10 minutes.
Remove the kasha from the saucepan and put it into a porcelain dish. Add
a bit of cream and butter and stir very carefully until the consistency
is uniform. Eat, preferably as a stand-alone dish.
<end paste>
HTH
blacksalt

kalanamak wrote:

> You could use
> almond milk instead of cow milk, or, if you are pumping, breast milk.

No nuts for allergy-baby, and 2 liters of breastmilk is an extra pumping every
day for a month. But I bet it would be great with coconut milk, and I can have
that. Thanks!

Phoebe

Will she eat from a spoon? If so, just buy a box of Gerber Barley Babyfood.
Prepare it with water or EBM. If you want to make it more flavorful to
encourage her to eat it, mix in some mashed banana, applesauce or other
mashed/pureed/chunky fruit or whole yogurt (if you do dairy).

>From: Phoebe & Allyson

>The plan is for me to try
>barley, and if she isn't bothered by me eating it, to feed it to her.

Purchase some whole barley (purchase at a health food store), not pearl barley,
and cook it similarly to rice until softened. Give it a whirl in the food
processor with a bit of the cooking water to smooth it out. You might even
sweeten it with a bit of barley syrup (also available at health food stores in
bulk) to make it a bit more palatable.

Ellen